Its approaching September 23rd.
Almost a full year since my world turned upside down, and I am finally ready to write it all down.
Up until now, I have been brave enough only to find poetry, or the brave words from other bereaved parents that spoke to me so on such a deep level, that with quivering fingers and tears streaming down my face, I copied and pasted them onto facebook or this blog.
I have spent the last year searching the web, for "my baby died from cancer", "newborn leukemia", "cancer in utero", and I have found nothing to match my story. I have found a few "my baby survived cancer" or "miracle stories", and those left me realing with anger and jelousy, because mine was not a happy ending! I questioned my faith, i replayed every single moment over and over again, to find what I had done wrong or what I could have done differently to change the course of events that lead to my baby's death. Then I would spend days trying to understand my feelings of guilt! How could I not find happiness in those other stories? What kind of a monster feels jelousy over someone elses miracle story?. I thought I was all alone in this nightmare! I had found many stories of miscarriage and stillbirth and early infant death, and I have made deep friendships with many mothers who have experienced these losses. It almost feels like I have passed through a veil into another world, one where I have forgotten how to have normal conversations with people because I always end up thinking about Joaquim, a world where trivial things no longer concern me, a world where I feel awkward and uncomfortable, as if I am watching it all unfold from another planet.
There are days that pass by quite easily, where everything flows happily and life almost seems normal again, but before you know it, this pressure starts creeping up at you from behind...this reminder that all is not perfect. Then I start to feel guilty again (oh guilt, has become my close friend!), guilty for carrying on with my life and sometimes not thinking about it. But it inevitably always comes, the wave of grief, creeping over me slowly, inch by inch, sometimes over a period of a few hours, sometimes its agonisingly slow over a few days, until it gets hard breathe, to eat, to think, or even climb out of bed. It feels like I am treading through treacle, like gravity has suddenly become infinately more powerful and is sucking me to the ground, and I have to switch on my auto pilot life, to go through the motions so that no one notices this black cloud consuming my world. After all, my other children need me, they need to eat, the house needs to be cleaned, and miraculously I puppet my way through the day, only to collapse gratefully into bed as the emotions overwhelm me once everyone is alseep.
But last night, I found
http://onceamother.blogspot.com/. A writer/mother and friend,whom I have never met or spoken to, but her pain is so deeply linked to mine, I feel every word she writes as if it is my own. Reading her blog late into the night last night, and crying until my head could take no more, I decided to share my own story. My words may not be as eloquent as hers, but maybe, just maybe, there is someone else out there who is also searching for someone who's pain matches theirs. Its so funny, to think that pain can link you to someone, and help you to heal, just knowing that you are not alone in this journey.
So here goes.I have so much I want to say! So many thoughts and memories that I want to share its hard to find where to begin. So many intimate thoughts and feelings.So I thought I would begin with the pregnancy. And a little background into our beautiful family to help you gain perspective into this deep pain that has ripped my soul into a million pieces.
